INMR - The Institute for Neuromuscular Research
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Past Events
Events

Please return regularly to learn about the many events that INMR participate in and run.


Past Events:

Oct 1 2010 Tour Duchenne 2010 Fundraising by the INMR

The INMR raised over $20,000 towards Tour Duchenne 2010.
 
One of our PhD students, Fleur Garton, along with 22 other riders cycled the 1200km from Brisbane to Sydney in September 2010 raising money for Tour Duchenne.
 
The fundraising events held by the INMR to support Fleur in raising over $20,000 were a great success. It included events such as cake stalls, a movie day and the novel chef’s table degustation dinner - which was received with great enthusiasm…
 
Richard and Mikki Jones quote:
 “May I wax lyrical? What seemed a somewhat unassuming introduction to our cooking lesson rapidly escalated into a gourmet's delight, a culinary spectacular so calmly and expertly conducted by Brett and Team. The food preparation was expertly attended without fuss, but with great appreciation from us all. Each dish was generous, but fitted comfortably with the fore and after dishes. Audience participation was fun and the wine commentary and options game added another delightful dimension.
Our special gifts were warmly received and the Angove glasses will of course be put to appropriate use.
Congratulations! It was a superb night and I have had all my table guests thank me for including them in what turned out to be so memorable and different.”
 
For this we would like to thank Brett Deverall, Sydney Cooking School (www.sydneycookingschool.com.au) and Gerry Faramus, Angove Family Winemakers (http://www.angove.com.au/), as well as everyone who participated in any of our events and helped us raise this money.
 
Tour Duchenne - to support research into Muscular Dystrophy was established as a fundraising event by a very passionate and enthusiastic father of one of our patients. One form of Muscular Dystrophy, Duchenne Muscular Dystrophy (DMD), is an insidious gender-linked (in 99% of cases) muscle-wasting disease that leaves little boys (and in some cases, girls) unable to walk before they make their teenage years. As there is no cure, Duchenne results in premature death by late teens/early adulthood in 100% of cases. Even though it is a genetic disease, in up to 40% of cases there is no family history and the disease arises by way of a spontaneous mutation at conception. This means all children conceived are at risk of being born with Duchenne. (www.tourduchenne.com)
 
Fleur is also very passionate about this cause! Her younger brother has a form of Muscular Dystrophy and faces many daily challenges. He is now 17; we are told he loves racing his electric chair- which can go 10.7km/hr (!) but he does struggle and miss out on everyday things kids do without thought. Although it is unlikely he will benefit from a cure it is important to fund research now, to help other kids like him. One in 3000 babies will be born with Muscular Dystrophy and we are still in process of understanding the genes involved that cause this weakness.
Sep 24 2010 Chef's Table Experience Fundraising Dinner - Tour Duchenne

Please come join us for an exciting fundraising event that promises to offer you a gastronomical journey. Please have a look at our exclusive offer for a chef's table experience with world renowned chefs, Brett Deverell and Camilla Baker. We have two evenings, Friday and Saturday night hosting 30 people each night. There will be great food, wine, prizes, and giveaways on the night.

Please see attached flyer for more details and have a look at the Sydney Cooking School website for further information on this new and exciting venue www.sydneycookingschool.com.au

This fundraising evening is in support of Tour Duchenne which raises money for research into Muscular Dystrophy www.tourduchenne.com

Don't miss out places are strictly limited.

For further information please contact Leigh Waddell:
Email: LeighW@chw.edu.au
Phone: 02 9845 1455
Fax: 02 9845 3078

Or

Click here to download the Inviation. (327,934bytes)
Click here to download the credit card payment form. (157,371bytes)
Jun 27 2010 Toy Story 3 Charity Movie Screening for Tour Duchenne

Toy Story 3 Charity Movie Screening FlyerPlease come to our charity movie screening of Toy Story 3 in 3D in support of Tour Duchenne at 9.30am on Sunday 27th June.

Tour Duchenne supports research into Muscular Dystrophy, a genetic muscle wasting disease for which there is no known cure. In support of this cause 60 bike riders will be cycling 1200km from Brisbane and Melbourne to Sydney to raise $1.5 million to support research into this devastating disease. One of our PhD students, Fleur Garton, is riding in the event to be held in September this year. She too is very passionate about this cause- her younger brother has a form of Muscular Dystrophy and faces many daily challenges.

For more information please visit www.tourduchenne.com.

There will be a raffle drawn on the day, please contact us to purchase raffle tickets. If you are unable to attend the event, you will be contacted to claim your prize.

If you are unable to attend the movie screening and would still like to help, donations can be made at www.everydayhero.com.au/fleur_garton and would be greatly appreciated.

Please click on the link below for more details on the movie flyer.
Click here to download flyer. (859,553bytes)
Click here to download Movie Ticket Order Form. (119,362bytes)
Mar 7 2009 Tour Duchenne Charity Bike Ride, 7 to 16 March, 2009

Tour Duchenne

The Tour Duchenne 'Million Dollar Challenge' aims to raise $1 million which will be used for research into finding a cure for Duchenne Muscular Dystrophy (DMD), which affects 1 in 3500 boys in Australia. At present DMD has no cure and sufferers fight with losing the use of their muscles, tendons and ligaments. Ultimately they face the prospect of life in a wheelchair and a shortened life expectancy. The inaugural 'Million Dollar Challenge' event will take place from 7 to 16 March, 2009.

If you would like to be part of this exciting adventure and do something special for the boys who suffer from Duchenne Muscular Dystrophy, please contact us via the website below. Places on the Tour Duchenne 'Million Dollar Challenge' are limited and filling fast. If you can't participate as a rider, but would like to make a difference, then please pick a rider, read their story and make a tax deductible donation.

http://www.tourduchenne.com

Click here to read more. (40,960bytes)
Aug 10 2008 Sun Herald City2Surf on Sunday, 10 August 2008

City2Surf 2008$5,000 raised by the "INMR Team" this year

This year we had a team of 23 walking or running in the Sun Herald City2Surf. Our team was led by Professor Robert Ouvrier, Head of the Institute for Neuromuscular Research and included Leanne Mills and Arahni Sont from the INMR, plus patients’ family members and friends. Some of the Team were able to meet up during the race, or at the Children's Hospital at Westmead "Think Kids Challenge" tent at the end. Through the Everyday Hero online fundraising page plus some offline donations, we were able to raise over $5000.

These funds will be used towards the purchase of a complex software package called Ingenuity Pathway Analysis. The INMR scientists are currently developing state-of-the-art technology - using tiny chips called "microarrays" - that allows them to simultaneously measure the activity of more than 20,000 different genes in a single sample of patient muscle. They will use the software to help interpret the huge amounts of information generated by these experiments as it provides tools for visualising and analysing complex data. The Ingenuity package will allow them to use the microarray results to build a detailed molecular understanding of how a single change in a DNA strand can have such terrible effects in a disease like muscular dystrophy - and potentially, how to halt or even reverse those effects.
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