INMR - The Institute for Neuromuscular Research
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Past Events
Events

Please return regulary to learn about the many events that INMR participate in and run.


Past Events:

Mar 11 2008 Meriton Sydney Invitational Pro-Am Golf Tournament, 11-14 March 2008

After weeks of wild storms and heavy rain, the players in this year’s Meriton Sydney Invitational enjoyed fabulous weather, with blue sunny skies and 30 degree windless days – a golfer’s delight.

Now in its 5th year, the 256 players tested their games at Terrey Hills, Macquarie Links, the Lakes and finally at the newly revamped Cromer course.

This unique event was again very well supported with World #63, Brendan Jones headlining the tournament, along with tournament winner, Scott Laycock, Terry Price, Cameron Percy, Chris Campbell, and young guns James Nitties and Kurt Barnes. The ALPG section of the event saw Joanne Mills desperate to hold off a slew of players including Loraine Lambert, Kristie Newton and last years winner Shani Waugh.

The four day event concluded with a Gala Charity Dinner at Star City Casino with more than 350 players, sponsors and guests enjoying the sounds of Neil Diamond impersonator, Peter Byrne and his band. The night was bought to a close with Harry and Rhonda Triguboff presenting a cheque for $50,000 to the INMR. Professor Robert Ouvrier (Head) and Professor Kathryn North (Deputy Head) represented the INMR.

The Meriton event has now raised in excess of $255,000 for charity, of which $200,000 has gone to the INMR. We would like to thank John Small and Neil Warren for organising the event, all the players and the Major Sponsor, Meriton. We also note the ongoing generosity of the 2008 Platinum Sponsors namely Club Car, Tyrell’s Wines and Horwitz Publications (Golf Australia). We also wish to thank this year’s Gold Sponsors (Ecco, Tasco, Display Systems Australia, Macquarie Bank and Bradman’s) and those companies donating gifts for the silent auction held at the Gala Charity Dinner.
Nov 15 2007 Neurofriends Committee Luncheon at Arabella- November 15 2007 raises $20 000 for INMR

The NeuroFriends Committee was established more than 20 years ago with the goal of raising awareness and funds to support the work being undertaken by The Neurology Department at The Children's Hospital at Westmead. NeuroFriends has supported the INMR since its inception in 1999.

For the past few years, the committee has organised an annual luncheon, and the event in 2007 was held on 15th November at the leading Lebanese restaurant, Arabella in Newtown. The proceeds raised from this event, of just over $20 000, will be used to purchase of two CoughAssist machines for use by the patients at the Neurogenetics Clinic. At the luncheon, Dr John Tidmarsh, spoke about some of the places he has explored during his 30 years as an archeologist.

The INMR thanks the NeuroFriends Committee for their hardwork over the years and the substantial amount of funds donated to support the work of the INMR.
Aug 12 2007 INMR City2Surf Team- August 12th raises $4000 for the INMR

The INMR Team enjoyed a great day out in this year’s Sun-Herald City2Surf. Our team of eleven (including two children in strollers and two keen runners) enjoyed the Sydney sunshine along with 60,000 others. Thanks to all who supported us as we raised over $4,000. These funds will go towards the purchase of our own CoughAssist machine for use by our patients suffering from muscular dystrophy disorders.

At the top of heartbreak hill (the 8 km mark), we managed to take a team photo, that included seven of the eleven INMR Team members.
Mar 26 2007 Meriton Sydney Invitational Charity Pro-Am Golf Tournament - March 26th-29th, 2007 raises $50,000 for the INMR

This year’s tournament was a tremendous success with 256 players playing the Twin Creeks, Terrey Hills, Macquarie Links and Lakes golf courses. The event concluded with a Gala Dinner at Star City Casino where a cheque for $50,000 was presented to INMR Professor Robert Ouvrier and Mrs Helen Graham from the INMR Advisory council.

This major fundraiser event raised $50,000 for the INMR. We would like to thank all the sponsors but especially Major Sponsor, Meriton Apartments and other sponsors: - NSW Chamber of Commerce, Macquarie Bank, Bradmans Windows & Doors, Tasco, Bettaplex, Liftronic, EBM Insurance, Tyrells’ Wines, Ricoh, Cutter and Buck, Schindler Lifts, Display Systems, BG Painting, ID Interiors, Ernst & Young and Club Car.

For the fourth consecutive year, John Small and Neil Warren organised the Meriton Sydney Invitational Charity Pro-Am Golf Tournament, with all proceeds going to support the work of the Institute for Neuromuscular Research at the Children’s Hospital Westmead.
Mar 8 2007 Dinner at Ottoman Cuisine, Walsh Bay March 8th 2007 raises $37 000 for the INMR

Members of the INMR Advisory Council organised a very successful fundraising dinner on March 8th. Billed as a “Night of Passion” the degustation dinner was held at the spectacular Ottoman Cuisine restaurant at Walsh Bay. Our host, and owner, Serif Kaya, opened the restaurant on February 13th after a $1 m plus fit-out. His prior Ottoman Cuisine Canberra was the only Turkish category restaurant listed in the SMH Good Food Guide 2007.

One-hundred and thirty supporters of the INMR dined under a sea of floating lights in one of Sydney’s most elegant restaurants. After a warm welcome from Mr James Graham, Chair of the Advisory Council and Serif, Professor Robert Ouvrier and Professor Kathryn North introduced the guests to the work of the Institute. A total of $37,000 was raised as a result of the dinner.
Jan 1 2007 Creman Wedding

A patient’s fundraising drive for neuromuscular research

Greg Cremen is a patient with Nemaline Myopathy who has worked with researchers at the INMR over many years to provide special insights into how having muscle weakness has affected his life – and how he has worked to overcome his physical limitations. Researchers in the INMR have discovered the genetic basis of Greg’s muscle disease and have been able to study the specific genetic mutation that causes his nemaline myopathy in living cells to work out the mechanism of his muscle weakness and how we may improve his muscle function.

Greg is a remarkable achiever despite his congenital muscle disorder – while being professionally successful in the accounting field based in London, he is endurance trained as a long-distance cyclist. When Greg and his long-term partner Heather Kingston decided to visit Sydney to finally tie the knot in front of family and friends in Australia, the pair decided to use their wedding as a fundraiser for the INMR.  Greg and Heather asked their family and friends to make donations to the INMR for research into nerve & muscle disease in lieu of wedding presents.

The INMR held a special event seminar on Nemaline Myopathy for patients and researchers when the newly-weds visited the INMR before heading back to the UK.  While researchers like Prof. Kathryn North and Dr. Edna Hardeman presented the audience with the latest at the research front, Greg Cremen gave an inspiring talk on his life-long battle with Nemaline Myopathy.  Another special participant was little Molly Bridle, a three year old Nemaline Myopathy patient who attended with her mother and grandmonther.  Belinda, Molly’s mother also captivated the audience with Molly’s story said it was an amazing opportunity for her to be able to meet Greg Cremen who has done so well despite his rare and potentially life-threatening muscle disease.  It was a great opportunity for the INMR researchers who work hard at the laboratory bench to meet the patients and witness the importance of their research work aimed towards improving the clinical outcomes for the suffers of neuromuscular disorders.

It was a special opportunity for Greg to pose for a photo alongside the glass sculpture displayed in the main foyer of the Children’s Hospital at Westmead Research Building, an attractive work of art based on science: it depicts the genetic mutation identified from Greg’s own DNA, a discovery made at the INMR in its pioneering research into Nemaline myopathy.
Jan 1 2006 Open Day 2006
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